Pop Culture + Chronic Illness

I can’t sleep. Earlier tonight, I had a bad seizure and mucked up my neck. My partner did an excellent job of making sure I didn’t hit my head, so that’s good. But my neck is a mess.

My SSDI appeal court date is next week and I’m wicked anxious about it. Today, my lawyer told me that I have a “bad” judge who rarely approves appeals. She also told me that it’s not good that I’ve been working part-time. One cannot make more than $1180 gross a month to be considered. Not net. Not after taxes. Gross.

That’s gross. So, I had to double check my pay stubs to make sure I wasn’t raking in the dough!

And … it was a rough day. My new primary care doctor seems overwhelmed by me. He told me to focus on taking care of my neurological stuff and to get my kneecap replaced. That I can’t work on any of my other medical problems right now.

Pro-tip: Don’t tell patients that you’re impressed by how well they’re handling multiple illnesses; how they’re “holding together” and have such a great attitude.

I’m not okay.

9. I can’t language

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