Ehlers-Danlos Makes Me Feel

Hey! It’s Ehlers-Danlos Syndrome (EDS) Awareness Month. I was diagnosed with EDS in 2015, shortly after recovering from cancer. Useless was the first word that popped into my head when I saw this graphic. I can’t drive anywhere. I need assistance to get to my medical appointments. I can’t even shower on my own.

I’m the worst emergency contact ever. I wish to the moon and back that I could take care of myself and others. To be able to make and keep plans with my friends and family. I’m utterly undependable because I never know how my health will be from minute to minute; I’m like weather in New England.

I miss my old self. I’m not trying to make folks feel bad for me, I’m just simply sharing how my unreliable body makes me feel. When I have an EDS flare day, it could be from a headache, migraine, subluxation, postural orthostatic tachycardia episode, seizure, fall, bout of insomnia, or reaction to a medication.

But my cat makes me feel less useless. At least I’m able to cuddle her! And all my lovely social media pen pals help to put a smile on my face. (Just disregard the lack of movement from my eyebrows. That’s from the Botox for migraine injections.) xoxo