Sigh

My tendons are shot because of being hypermobile. My ankle gives out all the time and I lose my balance. Sometimes I fall. My right foot feels all crunched up and every step I take is painful.

My foot surgeon (named Dr. Martin 😂) left my hospital so I was supposed to see a different doctor in March. Dr. Martin had performed joint stabilization surgery on my left foot in 2015. The last time I saw her, we had discussed tendon reconstruction surgery on my right foot. I was still working full-time then and couldn’t afford time off.

Of course the appointment with the new surgeon was canceled and rescheduled and then canceled again and then scheduled with a nurse practitioner (NP). I tried to get an appointment scheduled with the doctor, but I was told that they didn’t have any openings.

My knee surgeon said it would be worthwhile to have the NP triage, but he was like, “You need to see the doctor.” So of course, I saw the NP (who is top notch, BTW) and she was like, “You need to see the doctor.”

SIGH. Going to the hospital is nerve-racking enough and now I feel like I wasted my time. The upside is that it was nice to see the NP (I’ve seen her for five years now) and she told me that she had been thinking of me because she had a couple of hypermobile patients. Having seen me today, she’s thinking of reaching out to them to talk to them about Ehlers-Danlos syndrome.

Tomorrow, I have my annual cancer screening (I had cervical cancer) with my new gynecologist, Dr. Johnson. My previous gynecologist, Dr. Dick, has retired. I kid you not. I think my doctors are using aliases. 😂